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MS incidence study in Catalonia

This study was launched in January 2009 and aims to determine the incidence of MS in Catalonia and its evolution over time, to establish whether there is a similar phenomenom of increased incidence in our area, as described in other regions.

It is a population-based prospective study based on the Identification of early symptoms suggestive of demyelinating disease (CIS). Every CIS is monitored over a 3 year period (2009-2012) to its possible conversion to MS. This will determine the incidence at the begining of the clinical symptoms of the disease (onset incidence).

To achieve a comprehensive identification of new diagnoses of MS, we have launched an official MS Registry in Catalonia, with a wide collaboration of hospitals throughout Catalonia that attend patients with this disease.

 

 

Epidemiology


Highlights

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Desde el pasado 20 de marzo el Registro EPIDEMCAT permite introducir pacientes prevalentes, es decir, aquellos con inicio de los síntomas antes de 2009 para las formas en brotes y antes del 2006 para las fomas de inicio progresivo. De esta forma, el Registro será completo, permitiendo conocer el impacto global de la enfermedad en Catalunya. Para facilitar la identificación de los pacientes, se ha sustituído la calve identificativa DNI por el CIP.

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El pasado mes de octubre de 2012 se celebró una reunión de trabajo con los participantes en el Registro con una doble finalidad: dar a conocer los datos trascurridos 3 años de funcionamiento y explorar opciones de mejora y expansión del registro. Para más información consultar acta reunión.

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By january 2012, The MS Registry of Catalonia includes over 600 patients.

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An European Registry of MS (EUReMS) is starting. The European Multiple Sclerosis Platform (EMSP) is coordinating the project EUReMS, carried out by a multidisciplinary team and funded from the European Commission. The CEM-Cat has been selected by the European Multiple Sclerosis Platform as one of the centers participating in the project. Learn more.

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